This is the assertion of Labour’s Parliamentary Candidate, Steve Parry-Hearn, who took part, this Saturday, in a vigil held by the Motor Neurone Disease Association.
The vigil was a highly-organised, well-attended event, involving participants from across Gloucestershire, the purpose of which was to promote the need for those with MND to have timely access to appropriate communication aids. Some wore tape over their mouths to illustrate the way sufferers feel when they have lost the ability to speak.
“This disease is devastating and immensely debilitating. For many, what funding provision there is available, is too little and too late. I have worked for a Disability Charity myself for the last ten years. I never fail to be moved, and inspired in equal measure.”
“One thing I have learned in life is that people with any disability do not want sympathy, they want, and deserve, our respect, which includes having access to the right support, when they need it most.”